Showing posts with label ALS cure. Show all posts
Showing posts with label ALS cure. Show all posts

Monday, February 27, 2017

Shannon Fabrics Supports the Hopes & Dreams Quilt Challenge for ALS

Greetings from Shannon Fabrics! Can we just say how much we love Quilters Dream® Batting?  In fact, almost all of the quilts that are made by our Cuddle® Specialists are made with Quilters Dream Batting. It’s easy to work with, soft, fluffy, warm, and it makes our applique quilts especially fluffy! We made this cute elephant quilt with Dream Puff. Shannon Fabrics is also so proud to be a sponsor of the Quilters Dream Hopes and Dreams Quilt Challenge forALS which raises awareness of ALS-Lou Gehrig’s Disease, provides quilts to ALS patients and raises funds for the cause. 


  
Quilters Dream® Batting is amazing. We especially love the Dream Puff for Cuddle®. It is light and lofty. It doesn’t add weight. And it is 1.5 times warmer than down. We used Quilters Dream Puff for our Elephant Quilt and it turned out great.



Since the majority of our quilts use a “quilt as you go” method, using batting like Quilters Dream Puff makes our quilts look extra fluffy and plush, and here at Shannon Fabrics, we are all about the extra softness and yummy goodness! Here is an example of one of our applique quilts…pattern will be available from the Shannon Fabrics website soon!

You can find Shannon Fabrics at many local quilt shops and fabric stores, and online at fabric.comtheminkyboutique.com, and fabricdepot.com. You can also view our Store Locator to find online shops and shops near you.




Stay up-to-date on what’s happening! Join our mailing list. Subscribe to our blog, Sewciety. Connect with us on social media too on the following: FacebookPinterestTwitterYouTubeInstagram, Google +, and Flickr.




Thanks for letting us visit with you today. If you’d like to find out more about the Hopes and Dreams Quilt Challenge for ALS, click here.



Making The World a Softer Place™


Hugs from your friends at Shannon Fabrics

Thursday, January 22, 2015

Petition for GM6 drug that could help ALS patients.







The drug company, Genervon, a small biotech,  is doing the unheard of in ALS.  In early February, Genervon, is going to meet with the FDA to ask for accelerated approval for its drug, GM6,  for ALS.   

This trial drug was tested on 8 ALS patients and it has helped, slowed or stopped their ALS progression!   PLUS, a ventilator patient (like Josh) who has had ALS for 9 years, took the low trial dose of GM6 --- and it has helped him with breathing, speech and swallowing!   

We need your help (again)!


There is an important petition on Change.org requesting Congress to support us in asking the FDA to approve this drug NOW.     It is very important to get the maximum number of signatures for maximum impact to influence and achieve drug acceleration and approval.  

I am asking that you please take a moment to sign this Change.org petition asap (see below)-- and forward this to your contacts and share on your Facebook page - asking for as many signatures as possible.

Also...please consider submitting  a request directly to the FDA (link below).

This drug could possibly help Josh and all of our friends currently living with ALS.   If GM6 receives accelerated approval - it's the only drug close to having a chance of helping Josh and today's ALS patients.  Without accelerated approval of GM6 - today's ALS patients do not have any medication options to help them.


How you can make a difference:
1. Go to https://www.change.org/p/food-and-drug-administration-preliminary-approval- of-genervon-gm6-for-use-in-als and sign the petition asking the FDA for conditional approval of GM6.
2. Go to http://www.accessdata.fda.gov/scripts/email/cder/comment.cfm and submit a comment to the FDA supporting conditional approval of Genervon GM6 for people with diagnosed ALS.

3. Write your congressperson and senator asking them to urge the FDA to grant conditional approval.

4. Share this post on every social media you use. This message needs to go viral.

Thank you so much (again),  
Kathy Thompson